Developmental Behavioral Pediatrics Research Network
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Family Navigation to Reduce Disparities in Timely Autism Diagnosis and Access to Early Intervention

 Family Navigation to Reduce Disparities in Timely Autism Diagnosis and Access to Early Intervention

Participating Sites: Boston University School of Medicine , Boston Medical Center, The Children’s Hospital of Philadelphia, Yale University

Objectives

 

The study’s specific aims are aligned with the R34 grant mechanism, the competition to which we will submit the proposal. R34 mechanism funds clinical trial planning grants. It is not designed to support fully powered efficacy studies; rather its purpose is to prepare investigator teams to conduct such studies.

 

1. Conduct Plan-Do-Study-Act improvement cycles in collaboration with DBPNet participating sites, to adapt and optimize the family navigation to the specific issues confronting low income, minority parents of young children referred for an autism diagnostic assessment;

 

2. Field testing logistical aspects of a randomized study of family navigation, including family navigator training, participant recruitment and flow, delivery and tracking of navigator services, and collection of baseline and follow-up data;

3. Obtain empiric estimates of key study parameters to inform future study design, including within-group standard deviation of outcome measures; correlation of outcomes measured at baseline and follow-up, and effect size estimates of the intervention on early diagnosis of autism; and

 

4. Assess qualitatively, from the perspective of parents and pediatric providers, the feasibility and acceptability of FN offered during the episode of care beginning with referral for autism diagnostic evaluation and ending 100 days after diagnosis.